We are honored to have Nicholas Webb, MD, serve as our scientific advisor. Save the Date: July 24-26, 2014 for the 8th International Cystinosis Congress at the Marriott Renaissance Hotel City Centre in Manchester, United Kingdom. Online registration will launch this fall, and check more often for updates.
More Details Coming Soon >>
Sigma-Tau Pharmaceuticals Launches Cystaran
For The Treatment of Corneal Cystine Crystal Accumulation in Patients
Learn More about Cystaran
The Pediatric Neurology Research Group at the University of California, San Diego (UCSD) is conducting a research study on "Outcome and Quality of Life in Adults with Cystinosis"
The Study involves an online questionnaire, and is looking for
two groups of participants.
More Information »