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PROCYSBI™ (cysteamine bitartrate)

Delayed-Release capsules, is FDA approved for the management of nephropathic cystinosis in adults and children 6 years and older.

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INTERNATIONAL REGISTRY

Sigma-Tau Pharmaceuticals Launches Cystaran For The Treatment of Corneal Cystine Crystal Accumulation in Patients With Cystinosis

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What Is Cystinosis?

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        A Guide for Parents, Patients,
        and Healthcare Professionals: (5 MB PDF)

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LEE KNAUS

Cystinosis: an Artists Inspiration

Oceans Of Life

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UCSD CYSTINOSIS STUDY

The Pediatric Neurology Research Group at the University of California, San Diego (UCSD) is conducting a research study on "Outcome and Quality of Life in Adults with Cystinosis"

The Study involves an online questionnaire, and is looking for two groups of participants.

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