MexicoAustraliaFranceGreat BritianIrelandGermanyNetherlandsSouth Africa     FEEDBACK  |  CONTACT US

9th International Cystinosis Congress in Valencia, Spain - 30 June - 03 July 2016 was a huge success with the largest attendance to date, 231 attendees.  We want to thank all of our sponsors and let everyone know that we will post pictures to our Facebook page, please see the link below and "like us".


Would you like to participate in the next Cystinosis Clinic at UCSD/ Rady Children's Hospital in San Diego, Ca?


To schedule appointments, patients should call Crystal at 619-543-7800



Delayed-release capsules - oral therapy for vital organs
- learn more -


CYSTARAN™ The treatment of Corneal Crystals in Cystinosis Patients

 -learn more -


         What Is Cystinosis?

         Join Our Email List

          A Guide for Parents, Patients,
          and Healthcare Professionals: (5 MB PDF)
          English   Turkish   Persian
          Spanish   Arabic   Dutch




The Pediatric Neurology Research Group at the University of California, San Diego (UCSD) is conducting a research study on "Outcome and Quality of Life in Adults with Cystinosis"

The Study involves an online questionnaire, and is looking for two groups of participants.

More Information »



© 1998 - 2016 Cystinosis Foundation, Inc., 58 Miramonte Drive, Moraga, CA 94556
1-888-631-1588 or (925) 631-1588

Website Design Donated By ePaiges Design Group, LLC