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The Cystinosis Foundation has been hosting family conferences in the U.S. and Europe since 1983. Read about our 9th International Conference and more in the latest Newsletter  by Clicking Here.

 

Would you like to participate in the next Cystinosis Clinic at UCSD/ Rady Children's Hospital in San Diego, Ca?


 

To schedule appointments, patients should call Crystal at 619-543-7800

 

Procysbi

Delayed-release capsules - oral therapy for vital organs
- learn more -

 

CYSTARAN™ The treatment of Corneal Crystals in Cystinosis Patients

 -learn more -


   QUICK RESOURCES

         What Is Cystinosis?

         Join Our Email List

          A Guide for Parents, Patients,
          and Healthcare Professionals: (5 MB PDF)
 
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INTERNATIONAL REGISTRY

 
 

UCSD CYSTINOSIS STUDY

Dr. Doris Trauner with the assistance of Jennifer Crowhurst  is conducting a study on Cystinosis patients related to memory and attention function. Patients will be brought to San Diego for two days. Patients will be given the results. Please email Dr. Trauner if you are interested in participating.

 



 

 
 
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1-888-631-1588 or (925) 631-1588 info@cystinosis.com


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