COMMITTEE

Elena Levtchenko, MD
Conference Chair

Leo Monnens
Conference Co-Chair

Jean Hotz
President Cystinosis Foundation

Francois Couppey
AIRG - France

ORGANIZATION

Marjolein BOS
Cystinose Groep Nederland en België (VKS)

AIRG - Nederland

Jean Hotz
President Cystinosis Foundation

Francois Couppey
AIRG - France

Jean-Claude Barré
AIRG-France

Samantha Parker
Orphan Europe - Paris

Sylvie Moreira
Orphan Europe - Paris

Claudia Sproedt
Cystinose Selbsthilfe, Germany

Freek Wonnink
The Netherlands

Frank Ritchie
Cystinosis Foundation

Brian Long
UK

Jonathan Terry
UK

Anne-Marie  O'Dowd
Ireland

Holly Reuter
USA

Victor Gomez Molina
Mexico

SCIENTIFIC COMMITTEE

Elena Levtchenko, MD
The Netherlands

Henk Blom
The Netherlands

Leo Monnens
The Netherlands

William Vant'Hoff MD,
UK

Willaim Gahl
USA

Patrick Niaudet
France