|
Edit
|
Serena
|
2002
|
serena@
floweret.dk
|
|
Oslo
|
Oslo
|
Norway
|
|
Edit
|
Debbie & Miklos
|
Adorjan
|
prissyk@
hotmail.com
|
Parents of Devin
|
Toronto
|
Ontario
|
Canada
|
|
Edit
|
Tony & Ruth Ann
|
Ahnen
|
ta0054@
erols.com
|
Parents of Katie
|
Sellersville
|
Pennsylvania
|
USA
|
|
Edit
|
Elaine
|
Akers
|
eakers@
uabmc.edu
|
Grandmother to Hannah Creel born 10/11/99. Rickets/hypophosphatemia diagnosed at 16 months. Cystinosis diagnosed at 20 months.
|
Morris
|
Alabama
|
USA
|
|
Edit
|
Abbas
|
Alabbad
|
aabbad@
kfshrc.edu.sa
|
I am a consultant pediatric nephrologist caring for children with renal diseases including cystinotic children. Ready to help patients from the middle east. Fax # 9661-442-7784
|
Riyadh
|
MP
|
Saudi Arabia
|
|
Edit
|
Rebecca
|
Alderton
|
z.e.turtle@
rmi.net
|
Parent of Ethan (cystinosis), Zachary and Roland
|
Pueblo
|
Colorado
|
USA
|
|
Edit
|
Rebecca
|
Alderton
|
zeturtle1@
mindspring.com
|
my son has cystinosis,and we are doing peritoneal dialysis.
|
Pueblo
|
Colorado
|
USA
|
|
Edit
|
Kiera
|
Allen
|
None
|
none
|
Bradely
|
IL
|
USA
|
|
Edit
|
zqapynynxydo
|
amzyjaqipi
|
ozosijiha@
jujefhaxesyj.com
|
That got her mouth, and id bewilling to bemore breast dd than the offer and.
|
lhymikfe
|
qimvyttevrapryt
|
USA
|
|
Edit
|
JACK
|
ANDREWS
|
janeandrews145@
hotmail.com
|
I am 13 years old and I have Cystinosis
|
MELBOURNE
|
VICTORIA
|
AUSTRALIA
|
|
Edit
|
Ali
|
Argoshi
|
fakhirali4@
yahoo.com
|
patient's father(zheen ali 2002)
|
Irbil
|
|
IRAQ
|
|
Edit
|
Pat and Dick
|
Arndt
|
parndt@
co.sarasota.fl.us
|
Grandparents to Alexandra Greeley born Nov 1996 without and Jack Greeley born Mar 2000 with cystinosis
|
Palmetto
|
Florida
|
USA
|
|
Edit
|
Mohammed & Nasim
|
Ayyaz
|
m_ayyaz@
hotmail.co.uk
|
parents of Halima (born 1992 w/c) Rizwan (born 1993 w/c)
Imran (born 1995 w/c)
|
Blackburn
|
Lancashire
|
England
|
|
Edit
|
vowhafowp
|
azselaxexbyn
|
rdoctadabo@
awysxa.com
|
Smell me move to be hiding paris hilton having sex from possibly some.
|
ysrudjesyqutirm
|
viqypq
|
USA
|
|
Edit
|
Joli
|
Baird
|
JoliBaird@
aol.com
|
Mother of 17 year old cystinotic, post transplant, daughter
|
Dodge City
|
Kansas
|
USA
|
|
Edit
|
Kelli
|
Bauman
|
jkbauman@
mail.tds.net
|
Mother of Karlee (Born 1991)
|
Juda
|
Wisconsin
|
USA
|
|
Edit
|
Barry
|
Beard
|
Prelude195@
aol.com
|
Adult living with Cystinosis.Born in 1975.
|
Harrisburg
|
Pennsylvania
|
USA
|
|
Edit
|
Robert & Jane
|
Becht
|
RoJa4@
aol.com
|
Parents of Cody with Cystinosis and Nick
|
Menomonee Falls
|
Wisconsin
|
USA
|
|
Edit
|
Larry
|
Beck
|
bearclaw@
vvm.com
|
Father of Koby Beck Born January 31 1995
|
Belton
|
Texas
|
USA
|
|
Edit
|
Lyndsey
|
Beeler
|
acb@
copper.net
|
Adult Cystinotic Born 1980
|
Salem
|
Oregon
|
USA
|
|
Edit
|
Allen & Debbie
|
Beeler
|
acb@
wvi.com
|
Parents of Lyndsey Born 1980
|
Salem
|
Oregon
|
USA
|
|
Edit
|
Christy & Rob
|
Beers
|
christybeers@
msn.com
|
Parents of Zacqary Beers, born in May 2000. Diagnosed in December 2001
|
Oceanside
|
California
|
USA
|
|
Edit
|
Valerie
|
Bishop
|
valeriebishop@
hotmail.com
|
Adult Cystinotic
|
|
Michigan
|
USA
|
|
Edit
|
Callie
|
Bonner
|
calliebon@
ms.com
|
Grandmother of Markell Bonner. (Born April 26,1999)2 years with Cystinosis
|
Houston
|
Texas
|
USA
|
|
Edit
|
Sue
|
Bowers
|
SueBowers@
hotmail.com
|
Mother of Erin, Adult Cystinotic
|
Sacramento
|
California
|
USA
|
|
Edit
|
Todd
|
Bradley
|
toddbradley2@
yahoo.com
|
21 yrs old. Diagnosed at 11 months. Kidney transplant at 10/30/94. Dialysis at 2/24/06. Waiting for kidney/donor
|
Easley
|
South Carolina
|
USA
|
|
Edit
|
richard
|
braun
|
rbraun@
fea.net
|
social
|
Seal beach
|
California
|
USA
|
|
Edit
|
Joyce or Bill
|
Brink
|
|
Parents of Bill (born 1978) and Dave (born 1980)
|
Independence
|
Kentucky
|
USA
|
|
Edit
|
Jessica
|
Britt
|
jbritt@
uclink.berkeley.edu
|
Adult Cystinotic (Born 1981)
|
San Carlos
|
California
|
USA
|
|
Edit
|
Oliver
|
Britten
|
Brubel2@
aol.com
|
Oliver is 15 and was born in London. He now lives in Los Angeles
|
Los Angeles,
|
CA
|
USA
|
|
Edit
|
Charlene, Jason & Devon
|
Brook
|
charlenebrook@
nf.sympatico,ca
|
Aunt,Uncle & Cousin of Jason Darrell Brook
Born 2000 Diagnosed at age 2
|
Bonnyville
|
Alberta
|
Canada
|
|
Edit
|
Geoff
|
Brook
|
blebrook@
nf.sympatico.ca
|
Father of Jason Darrell Brook Born Feb.2000 W/C
Diagnosed age 2
|
Bonnyville
|
Alberta
|
Canada
|
|
Edit
|
Blanche & BoB
|
Brook
|
blebrook@
nf.sympatico.ca
|
Grandparents of Jason Darrell Brook born 2000 w/c
|
Bonnyville
|
Alberta
|
Canada
|
|
Edit
|
Horst & Claudia
|
Brugger
|
huc@
fam-brugger.de
|
Parents of Nicole
|
Rheinfelden
|
|
Germany
|
|
Edit
|
Jeff & Sharon
|
Bryant
|
cass1820@
aol.com
|
Parents of daughter, Kelly (10/17/87)
|
La Crosse
|
Wisconsin
|
USA
|
|
Edit
|
Cheryl
|
Burns
|
ckburns@
ibm.net
|
Mother of Paul (born 1973) and Lindsay (born 1976)
|
Brampton
|
Ontario
|
Canada
|
|
Edit
|
Valentina
|
Busquet
|
sertecguillermo@
cpenet.com.ar
|
I m Valentina, I live in Argentina S.A. I m 11 y.o in decenber 05/2003 I ll be operate from my nicks because my growth is deficient and the doctors saids that they can correct the problem whith a pair of gramps.
Good Bye, GOD BLES YOU
|
Santa Rosa
|
La Pampa
|
Argentina
|
|
Edit
|
Dayna
|
Carlson
|
daynac@
chartermi.net
|
Had a child many, many
years ago with Cystinosis.
|
Calumet
|
Michigan
|
USA
|
|
Edit
|
Bonnie & Richard
|
Clark
|
rclark21@
sympatico.ca
|
Parent's of David born Sept 21/81
|
London
|
Ontario
|
Canada
|
|
Edit
|
Bridgette
|
Clark
|
bridgetteclark@
hotmail.com
|
Sister to David Clark (Born 1981)
|
Toronto
|
|
Canada
|
|
Edit
|
Jenny
|
Clark
|
ebclarke1@
tampabay.rr.com
|
Parent of Annie Gunsaullus (Born 1981)
|
Tampa
|
Florida
|
USA
|
|
Edit
|
Lesley
|
Cogar
|
leslie_hope_1992@
hotmail.com
|
Daughter of Tina & Bennie Cogar - born 1992
|
Webster Springs
|
West Virginia
|
USA
|
|
Edit
|
TINA
|
COGAR
|
tinacogar@
citlink.net
|
mother of lesley born 10/92
|
webster springs
|
west virginia
|
USA
|
|
Edit
|
Frederick
|
Conard
|
fconard@
comcast.net
|
Physician and Father of an adult patient
|
West Hartford
|
Connecticut
|
USA
|
|
Edit
|
Judy and Mick
|
Connors
|
miconn@
bigpond
|
parents of Heath (born 1990)
|
Newcastle
|
New South Wales
|
AUSTRALIA
|
|
Edit
|
Lisa
|
Council
|
charmed3519672002@
yahoo.com
|
I'am a Lisa Council who lost two children to cystinosis,( jackie and sherita council. It is still confussing to me,I never got the support and to this day, It is hard for me to come to this sight, but I love to read all the updates on the progress.
|
Waycross
|
Georgia
|
Ware
|
|
Edit
|
Rose
|
Covington
|
covingtonr@
alltel.net
|
Parent of Michael 13 yrs and Mary 7 yrs neither has transplanted
|
Wahoo
|
Nebraska
|
USA
|
|
Edit
|
Janet
|
Cummings
|
quilt4ever58@
hotmail.com
|
Sister to two cystinotic adults: Rose & Joseph Kacoyannakis
|
Framingham
|
Massachusetts
|
USA
|
|
Edit
|
Karen and Don
|
Cunningham
|
andrew649@
msn.com
|
Son Andrew born 2003 w/c,
daughter Kesley born 1990 w/o.
|
Millarville
|
Alberta
|
Canada
|
|
Edit
|
Valter
|
Cursio
|
valtercursio@
yahoo.com
|
I am father of a 6 y.o. girl with cistinosis.
|
São Paulo
|
São Paulo
|
Brazil
|
|
Edit
|
Amanda & Leigh
|
Davies
|
|
Parents of James
|
Warminster
|
|
England
|
|
Edit
|
George
|
Delles
|
gdelles@
madmail.com
|
just me born 1937 greek
|
Tillamook
|
Oregon
|
USA
|
|
Edit
|
Bill & Portia
|
Devine
|
us_devine_2000@
hotmail.com
|
Parents of Joanie Devine (12 y.o)
|
Waynesville
|
North Carolina
|
USA
|
|
Edit
|
Tim & Julie
|
Di Prinzio
|
tim@
diprinzio.org
|
Parents of Daniel Born August 25 1992
|
Bethlehem
|
Pennsylvania
|
USA
|
|
Edit
|
Julie & Tim
|
Di Prinzio
|
julie@
diprinzio.org
|
Parents of Daniel Born August 25 1992
|
Bethlehem
|
Pennsylvania
|
USA
|
|
Edit
|
Aden
|
Diaz
|
DiazJ@
wahs.nsw.gov.au
|
Aden is 4years old and was diagnosed with cystinosis at 1 year old. He has a twin brother who does not have cystinosis
|
Mount Riverview
|
NSW
|
AUSTRALIA
|
|
Edit
|
Lisa
|
Dibert
|
lmd5@
psu.edu
|
Aunt to Shawn Born 1992
|
Spring Mills
|
Pennsylvania
|
USA
|
|
Edit
|
Steve
|
Dodd
|
thong25@
austarnet.com.au
|
Adult with cystinosis , born July 1975
|
Hervey Bay
|
Queensland
|
AUSTRALIA
|
|
Edit
|
Robert & Sylvia
|
Douglas
|
homerun@
kvmo.net
|
Parents of Amelia
|
|
Missouri
|
USA
|
|
Edit
|
jagqilfasmoq
|
dpokwib
|
ebhocz@
xojybsix.com
|
free threesome videos bisexual threesome interracial threesome
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ebicanosyka
|
irolmeti
|
USA
|
|
Edit
|
Brian & Carolin
|
Drumm
|
drumm@
sympatico.ca
|
Parents of Kirsten & Nathan (both have cystinosis)
|
Cobourg
|
Ontario
|
Canada
|
|
Edit
|
Keith
|
Dufrane
|
knm@
sisna.com
|
Parent of Amanda Rose Dufrane
|
Mesquite
|
Nevada
|
USA
|
|
Edit
|
Angela & Marcellus
|
Dunbar
|
ADgirlieQ@
aol.com
|
Parents of Foster Son Taye (Born 1996)
|
Palmetto
|
Florida
|
USA
|
|
Edit
|
Jennifer
|
Dunlap
|
kjdunlap@
bright.net
|
daughter Molly has cystinosis now is 18 had transplant 2003 wold like to hear from others
|
Continental
|
Ohio
|
USA
|
|
Edit
|
Penny
|
Durant
|
PennyMator@
yahoo.com
|
I am 22 years old..I was diagnosed with cystinosis when i was 11 months old.
|
Pass Christian
|
Mississippi
|
United States
|
|
Edit
|
xywatubv
|
dzitbomid
|
ohihzefpab@
josyfonyqtij.com
|
bbw vids A suddenresurgence of its an awful shore aplace.
|
bosqolejh
|
cewisbivt
|
USA
|
|
Edit
|
Carson
|
Eggland
|
egglands@
iowatelecom.net
|
Age 22. Carson will graduate from the University of Iowa with a degree in business management in May 2006. He has accepted a full-time position with the Ronald McDonald House in Iowa City starting June 2006. Parents are Sara & Al Eggland.
|
Pella
|
Iowa
|
USA
|
|
Edit
|
vevrurugwef
|
ehetrykwop
|
nidalsofbigf@
ncuhaj.com
|
bbw facial bbw mom bbw cleavage
|
obdolalapihuz
|
asemid
|
USA
|
|
Edit
|
Brian
|
Ensor
|
ensor@
email.com
|
cystinosis patient (born 1979)
|
Mount Carmel
|
Illinois
|
USA
|
|
Edit
|
Janet
|
Ensor
|
ensor@
midwest.net
|
Mother of son with cystinosis
son born 1979
|
Mt. Carmel
|
Illinois
|
USA
|
|
Edit
|
rkimrihluqle
|
epiqjy
|
snimsuhogiz@
yqyxzepev.com
|
I could. I want you follow britney spears xxx heracross the five of us had to.
|
dorryqmezguvx
|
dohtuqge
|
USA
|
|
Edit
|
Solrun & Gunvar
|
Eriksen
|
gu-eriks@
online.no
|
Parents to Eline (cystinosis) Klaus and Hanna
|
Karmøy
|
|
Norway
|
|
Edit
|
mary and thomas
|
evans
|
tiff2112@
yahoo.com
|
i have 2 kids with this rare disease age 9 and 4i would like to know more families with 2 kids that have it
|
ashland
|
kentucky
|
USA
|
|
Edit
|
Leslie
|
Ewing
|
daysfan73@
hotmail.com
|
Adult Cystinotic (Born 1973)
|
Middletown
|
Ohio
|
USA
|
|
Edit
|
anroqmyqe
|
exlukzu
|
ohwawv@
jowonriqg.com
|
fat fetish fat female models fat dicks
|
ocdawizcam
|
igusatamotuk
|
USA
|
|
Edit
|
Natasha & Kapono
|
Faisca
|
demonkitty05@
hotmail.com
|
mother of Julia(f)2yrs and Dominique(m)6months both with cystinosis,but live in Hawaii with limited resources. love to get more information and chat.
|
Hawi
|
Hawaii,USA
|
Hawaii
|
|
Edit
|
Lana
|
Farley
|
missbell@
myway.com
|
Adult cystinotic has had 2 transplants and is waiting for third. Has had 1 pregnancy successful son is almost 9
|
Layton
|
Utah
|
USA
|
|
Edit
|
bill
|
fazzani
|
g7pujbill@
radioham23.freeserve.co.uk
|
parents of peggy
|
lecce
|
|
ITALY
|
|
Edit
|
Rocco
|
Femia
|
|
Adult Cystinotic
Born 1972
|
Valley Stream
|
New York
|
USA
|
|
Edit
|
Ruth
|
Finch
|
rfitch@
sympatico.ca
|
A friend whose daughter has cystinosis
|
|
|
USA
|
|
Edit
|
Denice
|
Flerchinger
|
tcedenice@
microwavedsl.com
|
Mother of Tina, born 2003, diagnosed with Cystinosis
|
Clarkston
|
Washington
|
USA
|
|
Edit
|
Denice
|
Flerchinger
|
tcedenice@
microwavedsl.com
|
Mother of Tina, born 2003, diagnosed with Cystinosis
|
Clarkston
|
Washington
|
USA
|
|
Edit
|
Patrick
|
Flood
|
patrick@
floodp10.fsnet.co.uk
|
Father of Zowiann Born 1995
|
Pontypridd
|
Maesycoed
|
Wales
|
|
Edit
|
Mara & Gianni
|
Fogliada
|
gordonafogliada@
libero.it
|
Parents of Riccardo Born 1994 (Speak English & Italian)
|
Gordona
|
|
ITALY
|
|
Edit
|
Nicky
|
Foster
|
cana@
xtra.co.nz
|
mum of joshua born 1988
|
Dunedin
|
South Island
|
New Zealand
|
|
Edit
|
Cheri & Matt
|
Friend
|
cheri.friend@
atl.sungardtrust.com
|
Parents of Morgan age 4
|
Atlanta
|
Georgia
|
USA
|
|
Edit
|
Paula
|
Frye Shal
|
pjfrye@
busynet.net
|
Adult Cystinotic born 1970
|
Salem
|
Wisconsin
|
USA
|
|
Edit
|
Andre & Gaarmel
|
Funchess
|
STUDSCS@
aol.com
|
parents of 3 Anasaja has cystinosis
|
Jackson
|
Mississippi
|
USA
|
|
Edit
|
ofonansada
|
fyhfyfodk
|
kveqikejc@
tysibpedi.com
|
pussy cat dolls pussy eating pussy cum
|
axvohnizru
|
mesluctuqxaxx
|
USA
|
|
Edit
|
Eric & Dena
|
Gard
|
ednmgard@
eiis.net
|
Parents of Nikolaus w/o and Mikaela w/cystinosis
|
Casey
|
Illinois
|
USA
|
|
Edit
|
INA AND VICTOR SR.
|
GARDENER
|
IRG2C@
AOL.COM
|
PARENTS TO VICTOR JR (3 1/2YRS OLD W/C AND DAUGHTER 16MONTHS DON'T KNOW
|
BEDFORD HTS
|
OHIO
|
USA
|
|
Edit
|
Ricky & Darlene
|
Gibbs
|
cheyenne@
apex.net
|
Parents of Cheyenne
|
|
Kentucky
|
USA
|
|
Edit
|
Heidi og Herbjørn
|
Gilje
|
hhgilje@
online.no
|
Parents of Maria (Cystinosis, born 2003), Oliver (born 1999) and Emilie (born 2001)
|
Dirdal
|
Rogaland
|
Norway
|
|
Edit
|
Paul & Stephanie
|
Gillenberg
|
gillenberg@
aol.com
|
Parents of Kurt (Born 1992) and Clair (Born 1993)
|
Canyon Country
|
California
|
USA
|
|
Edit
|
odlonninleh
|
gitgih
|
vmuwemidmudu@
zibepnufeq.com
|
lindsey lohan thong lindsey lohan photos lindsey lohan nude photo shoot
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korowrezbasib
|
cdibbyzik
|
USA
|
|
Edit
|
Whitney
|
Glaize
|
gusf500@
aol.com
|
adult with cystinosis (23 years old)
|
Orlando
|
Florida
|
USA
|
|
Edit
|
goheroPet
|
goheroPet
|
blelviree@
krim.ws
|
http://www.blogtalkradio.com/Buy_Viagra_now buy viagra
buy viagra
buy viagra
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MESSAGE
|
MESSAGE
|
MESSAGE
|
|
Edit
|
Victor
|
Gomez
|
victor_gomez1@
usa.net
|
Adult Cystinotic
|
Mexico City
|
|
Mexico
|
|
Edit
|
Mrs. J.
|
Gopal
|
jgopal@
msb.intnet.mu
|
Parent of Yoginni (Born 1999)
|
Vacoas
|
Coromandel
|
Mauritius
|
|
Edit
|
Judy
|
Gordon
|
jgordon@
tssa.org
|
Parent to Lindsay Wells (Born 1978)
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Mississauga
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Ontario
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Canada
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Edit
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Marcus
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Graham
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ecollis@
xtra.co.nz
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nephropathic cystinotic
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Whangarei
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Waipu
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New Zealand
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Edit
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Christy & Dave
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Greeley
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greeleycd@
aol.com
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Son Jack born 3/17/2000 with cystinosis
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Lincolnshire
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Illinois
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USA
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Edit
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Tammy
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Grimes
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rhaeseven@
aol.com
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parent of Nathan only child born 12-12-87
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Northglenn
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Colorado
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USA
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Edit
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Kevin & Mary
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Grover
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Mary81899@
aol.com
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Parents of Samantha (Born 1988)
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Epping
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New Hampshire
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USA
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Edit
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ivwowsuk
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gtydarmiwo
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cufosec@
rcepqebu.com
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tara reid naked tara reid porn tara reid sex scene
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emuzibgevzygko
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bylicrujtergeni
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USA
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Edit
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Patricia
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Hagen
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plh1962@
aol.com
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Parent of Melissa (Born 1994) with Cystinosis & Kenton (Born 1986) & Stephen (Born 1987)
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Sebastian
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Florida
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USA
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Edit
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Clarence
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Hagene
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HAGWAG@
msn.com
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Male age 68 son of Clarence and Fay Hagene both now deceased
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St. Augustine
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Florida
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USA
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Edit
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Shane
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Hagene
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Shane266@
aol.com
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