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Cystinosis Diagnosed in Russia Although cystinosis is affecting 1 of 200.000 newborns in Europe and the United States, as far as we know until 2007 no patients with cystinosis were known in Russia. Therefore cystinosis was considered to be a “not-Russian” disease. The first Russian case of cystinosis was diagnosed by a paediatrician Mikhail Kagan in Orenburg, a large industrial city on Oeral, on the border between European and Asian parts of Russia. The same year two more patients were diagnosed. M. Kagan, together with a Moscow professor of paediatric nephrology Alexey Tsygin wrote a paper in the Russian Medical Newspaper aimed to reach as many as possible Russian physicians for informing them about cystinosis, which is most likely remains undiagnosed and untreated in the majority of Russian patients. We hope that this Internet page will help to spread information on cystinosis among Russian physicians and draw their attention to this rare, but potentially well-treatable disorder.
Article is on Page 9 of
the Newspaper
(In Russian)
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