Library &Resources

Ågrenska . . . . .
A Unique Centre of Knowledge

CVS ProCare Pharmacy
Your pharmacy source for Cystagon® capsules

Orphan Europe
Orphan Europe distributes Cystagon
throughout Europe and the Middle East.

Lauren's Hope
Lauren's Hope specializes in Medical ID Bracelets. From 14k Gold and Diamond Bracelets to Medical ID Watches.
http://www.laurenshope.com/

Gift Of Life
Gift Of Life Donor Program for those in the Eastern Pennsylvania, Delaware, Southern New Jersey area.

 
The US Transplant Games Celebrate 50 Years of Transplantation

HealingWell
Inforamtion and Rescoures for Diseases, 
Disorders, and Chronic Illness

There is a new Cystinosis Website full of information for those in and near the U.K.
Check it Out!!

By: Vera Koch - A  paper written in Portuguese and describes the Brazilian multicentric study on Nephropathic Cystinosis (it includes our experience with Cystagon) .  Click Here to Read

DEANNA LYNN POTTS SCHOLARSHIP
Children with cystinosis are living longer, thanks to medical science and therefore, embarking on careers. These careers require education. Education is expensive, yet something we do not want to deprive our children of in our world today. Due to the financially draining medical costs, it might prove difficult to send a child to college. Through this fund, we hope to help some of those students. A $1000 scholarship awarded annually.
Click Here for Eligibility and how to get an application.

Medical ID's as Jewlery